Hospitals are keeping secrets from cancer patients.

Demand Congress Pass The Cancer Treatment Outcome Transparency Act

The Cancer TOT Act will create the first Treatment-Specific Cancer Registry tracking and comparing survival rates and side-effect rates of FDA-approved cancer treatments.

Our Mission:

Protect Cancer Patients

Americans pay hospitals for cancer treatments.

But hospitals are hiding cancer treatment survival and side-effect rates from Americans.

Hospitals’ secrecy violates your consumer right to Cancer Treatment Outcome Transparency.

Before you pay, you have the right to know how often treatments kill cancer and how often treatments kill or harm cancer patients.

Cancer TOT Now is a consumer advocacy nonprofit demanding Congress protect cancer patients’ rights and safety by passing The Cancer Treatment Outcome Transparency Act.

The Cancer TOT Act will create the first Treatment-Specific Cancer Registry tracking survival and side-effect rates of FDA-approved cancer treatments.

Shocking But True:

Existing cancer registries are not treatment-specific

and do not include detailed side-effect and survival data.

This makes them useless for patients

weighing the risks of different treatment options and allows predatory hospitals to exaggerate the benefits of their most profitable treatments.

A Treatment-Specific Cancer Registry

will allow patients and doctors to confidently collaborate on treatments that prioritize both survival and quality-of-life.

A Cancer TOT Registry May Save Your Life.

Why TOT Is So Important

Treatment Outcome: The result of a medical intervention on a cancer patient's health condition.

Transparency: Hospitals’ disclosure of treatment-specific survival and side-effect data.

Treatment Outcome Transparency (TOT) allows cancer patients and their doctors to make safe and informed treatment decisions.

Today, hospitals’ lack of transparency is endangering cancer patients’ lives.

Abusing The Honor System

No federal laws or registries require hospitals to disclose when cancer treatments cause patients to die or suffer catastrophic injuries.

Hospitals are essentially on the honor system.

But the honor system doesn’t work when hospitals hoard invaluable treatment outcome data to compete with each other for patients or are financially motivated to exaggerate the safety benefits of treatments that maximize hospital profits.

Cancer Patients’ Rights

Before they pay hospitals, cancer patients have the right to know how often treatments kill cancer and how often treatments kill or harm patients.

Those rights are being violated.

It’s easy for hospitals to claim a treatment is effective or that side-effects are rare when hospitals can keep it secret after treatment side-effects result in patients suffering or dying.

Keeping Side-Effects Secret

Instead of collaborating with the medical community, hospitals have chosen to silo cancer treatment outcomes internally, keeping life-saving data secret from patients and even from other doctors.

This means if you are diagnosed with cancer, no matter where you seek care, your life will be needlessly endangered because every doctor in the country is in the dark about how often treatment side-effects have killed or harmed patients at other hospitals.

This is a conflict between hospitals and Americans.

Congress must choose a side.

There are 535 Members of Congress. 3 of them work for you.

Make 3 Phone Calls to your 2 Senators and your Congressperson.

Demand they publicly commit to vote for The Cancer TOT Act.

You can help protect yourself, your family and every future cancer patient in the country.

  • It is completely unacceptable and totally avoidable that real-world side-effect and survival rates of cancer treatments are being concealed from patients by hospitals.

    A public Cancer TOT Registry will benefit everyone in the country, and one day, it might save your life or the life of someone you care about more than anything in the world.

    Call the only 3 people who matter (your Congressperson, your Junior Senator and your Senior Senator) and ask them to publicly commit to voting “Yes” for The Cancer TOT Act.

  • If you’re a doctor, researcher, registrar or health policy analyst, you know that forcing hospitals to stop keeping cancer treatment outcomes secret will allow doctors to craft more effective and ethical treatment protocols, remove roadblocks for cancer researchers, protect patients from predatory behavior and minimize the likelihood of patients suffering.

    Contribute your expertise to ensure The Cancer TOT Act empowers clinicians and researchers with missing data they desperately need and provides maximum protection for cancer patients.

    Email us at experts@cancertotnow.org.

  • If you’re a cancer patient or family member of a cancer patient and would like to share your story about how a hospital's lack of transparency may have caused you or your loved ones harm, email us at patients@totnow.org.

    In the coming months, we will begin to share examples of how some hospitals have weaponized their reputations to keep cancer treatment outcomes secret.

  • 535 members of Congress must choose whether they will protect cancer patients or hospital profits.

    Doing nothing is a decision.

    If you represent a Congressional office and have questions or requests related to The Cancer TOT Act, email us at congress@cancertotnow.org.