Take Action: Make 3 Phone Calls To Congress

Protect Cancer Patients

Demand congress pass The Cancer Treatment Outcome Transparency Act.

*Connects to the Capitol Switchboard

The Cancer TOT Act will create the first Treatment-Specific Cancer Registry tracking and comparing survival rates and side-effect rates of FDA-approved cancer treatments.

Take Action Now!

Hospitals are keeping secrets.

They’re concealing the survival rates and side-effect rates of cancer treatments from patients and even from other doctors.

Before they pay, consumers have the right to know how often treatments kill cancer and how often treatments kill or harm cancer patients.

Those rights are being violated.

The Cancer TOT Act will create the first nationwide Treatment-Specific Cancer Registry, tracking both survival rates and side-effect rates of FDA-approved cancer treatments.

One day, a Cancer TOT Registry may save your life, or the life of someone you care about more than anything in the world.

There are 535 Members of Congress - 3 of them work for you.

You can protect cancer patients and end hospitals’ abuse of the honor system.

Make 3 Phone Calls and demand your Congressperson, Junior Senator and Senior Senator publicly commit to vote “YES” for The Cancer TOT Act.

It's Easy To Make 3 Phone Calls To Demand Congress Pass The Cancer TOT Act:

  • Call The Capitol Switchboard

    Fast, efficient and simple.

    Call The Capitol Switchboard three times and ask to be connected to the offices of your Congressperson, your Junior Senator and your Senior Senator.

    The Capitol Switchboard is available 24 hours a day at 202-224-3121 and they can connect you to the correct Congressional offices using your zip code.

    Call The Capitol Switchboard

  • Call Your Senators and Congressperson Directly

    Prefer to call each office directly?

    Use these links for phone numbers to the offices of your Congressional Representative, your Junior Senator and your Senior Senator.

    After business hours? Don't worry about the time. You can leave a voicemail 24 hours a day.

    List of Representatives' Phone Numbers

    List of Senators' Phone Numbers

    (Note: All Senate phone numbers start with 202-224)

  • Can't Call? Send 3 Emails.

    You can also send direct messages to your Congressperson and Senators to ask they publicly commit to vote "YES" for The Cancer TOT Act.

    It's easy. Use these links:

    Email Your Representative:

    Enter your zip code and click on the Email icon to send a message to your congressperson.

    Email Your 2 Senators:

    Select your state, click the "Contact" links under your Senators' names, then fill out the Email forms.

Don’t forget to ask your Senators and Congressperson to publicly commit to vote “YES” for The Cancer TOT Act.

Here are 7 Reasons The Cancer TOT Act is Necessary to Protect Cancer Patients’ Rights and Safety.

  • Existing state cancer registries are not treatment-specific, making them helpful for understanding overall survival likelihood, but useless for patients and families weighing the risks vs. benefits of different treatment protocols.

    A publicly-available Cancer TOT Registry, with filters for treatments, cancer type, survival rates, side-effect frequency and patient demographics, will vastly improve on the important but limited data currently being collected by state cancer registries.

  • Currently, cancer registries do not track detailed safety rates (injuries or deaths during treatment) or side-effect rates (injuries or deaths post-treatment) of individual treatments or treatment protocols.

    This prevents cancer patients and their families from confidently collaborating with their doctors on treatment plans that prioritize both survival and quality of life.

  • No federal laws or registries require hospitals to disclose when cancer treatments cause patients to die or suffer catastrophic injuries.

    Hospitals are essentially on the honor system.

    But the honor system doesn’t work when hospitals hoard invaluable treatment outcome data to compete with each other for patients or are financially motivated to exaggerate the safety benefits of treatments that maximize hospital profits.

  • Instead of collaborating with the medical community, hospitals have chosen to silo cancer treatment outcomes internally, keeping life-saving data secret from patients and even from other doctors.

    This means if you are diagnosed with cancer, no matter where you seek care, your life will be needlessly endangered because every doctor in the country is in the dark about how often treatment side-effects have killed or harmed patients at other hospitals.

  • Cancer patients and their families have the right to know how often treatments kill cancer and how often treatments kill patients.

    Those rights are being violated.

    It’s easy for hospitals to claim a treatment is effective or that side-effects are rare when hospitals can keep it secret after treatment side-effects result in patients suffering or dying.

  • It is a disgrace that future cancer patients’ lives are needlessly endangered because the overwhelming majority of past cancer patients’ survival and side-effect data is being kept secret by hospitals. 

    One of the largest benefits that The Cancer TOT Registry will provide is ending the unnecessary suffering of cancer patients caused by doctors and patients being unaware of how many former patients have died or suffered catastrophic side-effects from cancer treatments.

  • The Cancer TOT Act will put an end to hospitals' selfish and destructive hoarding of invaluable treatment outcome data so it can be utilized by doctors and researchers to cure and improve the quality-of-life of cancer patients.

    Today, hospitals’ lack of transparency is endangering cancer patients’ lives.

    Forcing hospitals to stop keeping cancer treatment outcomes secret will allow doctors to craft more effective and ethical treatment protocols and remove roadblocks for cancer researchers, while also protecting patients from predatory behavior and minimizing the likelihood of patients suffering.